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Peer mentoring: a culturally sensitive approach to end-of-life planning for long-term dialysis patients

Contact Information

Keywords

Erica Perry eperry@nkfm.org

Quality of life, end-stage renal disease (ESRD), health care disparity, peer mentors, race, African American, advance directives (ADs)

Abstract

Background: This study is designed to explore the impact of peer mentoring on end-of-life decision making.
Methods: A controlled randomized intervention study with 203 patients from 21 dialysis centers across Michigan explored the impact of peer mentors, dialysis patients trained to help other patients, on end-of-life planning.
Results: Communicating information on advance directives (ADs) through peer mentoring significantly influenced the completion of ADs overall compared with distributing standard printed material or no specific designed intervention. However, the influence was most prominent among African Americans, not only increasing actual completion of ADs (P < 0.001) and comfort discussing ADs (P < 0.01), but also improving subjective well-being (P < 0.05) and anxiety (P < 0.05) during the study period. These effects of peer mentoring did not appear among white patients, although printed material on ADs decreased reported suicidal ideation (P < 0.05).
Conclusion: These results suggest the importance of addressing specific cultural factors in the process of AD education. Common practice assumes that printed materials are effective in educating patients about health care and decision making. However, peer mentoring, a relationship-centered person-to-person approach, may be more effective in some cultural groups because it partakes of oral, rather than written, traditions. Acknowledging cultural differences and tailoring our approach could be powerful in enhancing trust and participation and decreasing potential disparities in health care outcomes.

Citation

Peer mentoring: a culturally sensitive approach to end-of-life planning for long-term dialysis patients

DOI

10.1053/j.ajkd.2005.03.018

Model

Human

Conent Area

Erica Perry

EWB-Related Construct

(2) life satisfaction;

Study Design

Species or Study Population

(5) RCT

Sex (%Female)

49%

Age (Mean, SD)

age range: 19-83
peer intervention: 44 (20–83)
printed materials: 44 (23–74)
control: 45 (20–80)

Younger Controls?

No

Longitudinal Data?

Yes

Sample Size

280

Interventions

Peer Mentoring

Ethnicity (%white)

62%

Inclusion Criteria

patients needed to speak English, be assessed as competent, be older than 18 years, and not yet have completed an AD.

Exclusion Criteria

not stated

EWB Measures

Diener ilfe satisifaction

Non-EWB Behavioral
Measures

Hopkins Symptom Checklist
Death acceptance

Physiological Measures

N/A

Brain IMaging Modality

Brain IMaging Paradigm

N/A

Brain Region/Circuit

N/A

Biological Measures

N/A

Other Neural Measures

Data Availability?

No

Data Avalability Details

N/A

Diagnostic Measures

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